Doctors refused to give expensive injections to a boy from Yekaterinburg whose father twice held pickets on Red Square.

Sverdlovsk doctors will not administer the drug to a three-year-old To Misha Bakhtin The drug "Spinraza," which helps combat spinal muscular atrophy, requires injections every four months for life. A single package costs over five million rubles.
 
How to сообщил journalists Dmitry BakhtinThe decision to deny his son treatment was made at a secret consultation, to which the parents were not invited. Even last year, the father demanded that medical commissions and consultations be held only in his presence.
 
In 2021, Russians collected Misha Bakhtin spent 160 million rubles on an injection that helped stop spinal muscular atrophy but didn't restore him to his feet. His parents had to win a court case to get the expensive drug Spinraza. But even after that, doctors refused to administer the drug, fearing side effects.
 
This year the boy's father has twice went out to picket on Red Square. After this, a consultation was scheduled with the participation of Moscow specialists, which broke Because one of the neurologists refused to testify in the presence of the parents, the Federal Ministry of Health promised Dmitry Bakhtin to hold another consultation and send officials to it to ensure order.

Picket on Red Square on August 30. Photo by It's My City