A father with his sick child has taken to the Sverdlovsk city government to picket. He's demanding his son receive an injection that costs several million rubles.
Local media have been following the fate of the 2-year-old since birth. Misha Bakhtin, suffering from spinal muscular atrophy.
In 2021, Russians collected 160 million rubles to give him an injection of the drug ZolgensmaThis helped stop the disease, but did not get Misha back on his feet.
After this, the parents asked the Ministry of Health to administer an injection of the drug. Spinraza costing from 5 to 9 million rubles. In March 2022, this demanded even the court. However, doctors refuse administer the injection, citing possible side effects and incompatibility with another drug.
In June, parents have asked Chairman of the Investigative Committee Bastrykin and the Minister of Health Goosebumps provide the treatment guaranteed by law and punish officials who obstruct it.
The child's father Dmitry Bakhtin emphasizes that the sooner Spinraza is administered, the higher the effectiveness of the treatment will be.
Yesterday, the channel “Off the Record,” close to the Sverdlovsk governor, сообщилMisha Bakhtin will still receive the injection. This decision was made following a letter from the Investigative Committee. However, the parents will be warned that the consequences of the injection may be unpredictable.
Today, July 4, the father and his boy went out to picket the regional government building. He standing Surrounded by police, holding a sign reading "Help Save My Son," he demanded that he receive the injection today. An hour after the picket began, he was taken to a meeting with the Minister of Health of the Sverdlovsk Region. Andrey Karlov, and the wife stayed behind to take care of the child. However, after some time, the minister rode up to the picket site himself. Where is her husband now? Yana Bakhtina does not know.
According to officials, the drug Spinraza has already been given to Misha Bakhtin purchased and is stored in the pharmacy. But in Sverdlovsk region There is not a single doctor who is willing to diagnose the boy, since he has not visited local hospitals for more than a year.
Photo: It's My City, E1