"They're trying to force it on." In Russian regions, seriously ill children are now being given domestically produced equivalents of the drug Sabril instead.

French drug sabril, which helps stop epileptic seizures, the Ministry of Health began to replace with a domestic one - infiroyIt doesn't help everyone. Parents have to either buy Sabril out of pocket or watch their child's attacks become more frequent.

Five-year-old girl from Nizhny Novgorod Lisa пstopped issuing She's been taking the life-saving Sabril since July. They gave her Infira instead, but her daughter got worse: seizures began occurring every 40 minutes. Her mother had to buy Sabril herself—for 11,5 rubles. She contacted the regional Ministry of Health to have her daughter's Sabril reinstated, but so far no one has responded.

The first court cases regarding the Ministry of Health's refusal to allocate Sabril, which is unregistered in Russia, took place in Ryazan in 2016-2017. At that time, the mothers of three children with disabilities and the lawyer defending their rights James Smith We won the case, and the children began receiving the necessary medication. Now, there are supply shortages, but not everywhere.

— Federal doctors are prohibited from prescribing Sabril by its trade name; they prescribe it by its active ingredient. vigabatrin, which is present in domestic analogues—for example, the drug Infira. In some places, parents are persuaded to try the analogue, in others they are forced to. Krasnodar region Parents are threatened with complaints to child protection services, claiming the state is doing everything for their children, yet they don't want to take the medication. And in some cases, they've already filed complaints. They claim the parents are putting their children's lives and health at risk. Meanwhile, the parents have court orders requiring the Ministry of Health to issue Sabril specifically. There have been attempts to overturn the court's decision, but I've fought them off. — Ivanov commented to NeMoskva.

The cost of the domestic drug Infira, which does not help everyone, is three times higher than the French drug Sabril.

Photo: from open sources